• A self-management strategy that involves balancing activity and rest to avoid crashing - especially for conditions like ME/CFS.

  • Pacing is a self-management strategy for conditions like ME/CFS, fibromyalgia, POTS, and long COVID. It’s designed to help you balance activity and rest so you avoid “boom-and-bust” cycles. By monitoring your energy and staying within your “energy envelope,” you aim to reduce the frequency and severity of post-exertional malaise (PEM).
    It typically involves:

    • Identifying your current activity tolerance

    • Planning tasks with rest breaks

    • Using tools like heart rate monitoring to stay below your anaerobic threshold

    • While it can help prevent flare-ups, pacing does not aim to reverse the condition and, for some people, can reinforce a limited activity pattern that feels “stuck.”

    • Many patient groups and doctors recommend pacing as a safety-first approach, particularly in early or severe illness.

    • It can be combined with other strategies (nervous system regulation, brain retraining, gentle rehabilitation) if recovery is the goal.

    • Some people report that long-term strict pacing without moving towards activity expansion keeps them stuck in a cycle of fear and overprotection.

    • Pacing is not a treatment or cure — it’s a management tool.

    • Resources are often free or low cost.

  • Basic Costs Overview

    Paid options include:

    • Coaching programmes: £50–£100 GBP / $65–$130 USD per hour

    • Heart rate monitors: £30–£150 GBP / $40–$200 USD

    • Online courses: £30–£200 GBP / $40–$260 USD depending on length and depth

    Discount-friendly directory

    • ME Association (UK) – Free pacing leaflets and guides

    • Solve M.E. – Free pacing webinars and materials

    • Workwell Foundation – Free pacing and heart rate monitoring guides online

    • Personal pacing coaches – Many offer free discovery calls and may provide sliding scale pricing for people on disability benefits or with reduced income

    • Online support groups (ME/CFS, fibromyalgia, POTS communities) – Often share free pacing templates, tracking sheets, and tips

    • Most pacing resources are free through charities, patient organisations, or online guides

    • No formal illness-specific discounts are generally needed, but individual pacing coaches may offer concessionary rates on request

Previous
Previous

Acceptance and Commitment Therapy (ACT)